Books
Putting lived experience in the spotlight
COLLABORATING WITH THE COMMUNITY TO SHARE LIVED EXPERIENCE
While there are many reasons for creating our books, our highest hope is that it will reassure anyone affected by NF2 that there are people who can relate to their feelings and that, although they may not often feel it, they are not alone.
With thanks to the National Lottery we donate copies of our books to anyone affected by NF2.
NF2: Our Journeys
‘NF2 Our Journeys’ (published in 2013) is a collection of forty-four life stories written by people living with NF2 all across the world. The book aims to show those who feel isolated, that they are not alone and that they can still thrive despite the challenges NF2 will bring.
Living With NF2: From Us to You
Our second book (published in 2017) is a resource for anyone affected by NF2 and aims to raise awareness of the mental and emotional impacts of the condition. It speaks directly to the reader to normalise their feelings and offers lived experience on how to cope with the physical, mental, and emotional aspects of NF2. It also provides insight for family members, friends and medical professionals alike so that they can gain a deeper understanding of what it’s like to live with NF2.
