Privacy Policy

CYHU Privacy Notice

Updated: 24th May 2018


Can You Hear Us? C.I.C (CYHU) is a social enterprise dedicated to the needs of people affected by Neurofibromatosis Type 2 (NF2) in the UK. The Community Interest Company (C.I.C) is run by people with first-hand experience of the condition and exists solely for the benefit of the community.


CYHU is run by Jessica Cook and Paul scales and both can be contacted at


1. Introduction


We respect your privacy and understand that privacy is important to you and that you care about how information about you is used, so this privacy notice sets out details about what data we collect and how we use it.


2. Visitors to our website


Our website is meant as a hub for the community where they can learn about the activities and services that CYHU provide,help to raise awareness of the condition, purchase CYHU publications as well as being a source of knowledge regarding NF2.


The website makes use of cookies and more information can be found below in section 2.2 ‘Information about cookies’.


Where we collect personal data via our website, we will be upfront about it and it will be obvious to you that you’re providing personal data and how we will be using it.


Where you provide additional data, such as filling in a submitted form, you consent to CYHU processing the data provided. Sections 2.3, 2.5, 4, 5 and 6 explain what happens to your data when it is submitted to us via various means.


2.1. Google Analytics


When someone visits our website ( we make use of the Google Analytics service to collect standard information about visitors to the sites and their behaviour (e.g. what pages they viewed). The data provided by Google Analytics is anonymised and in no way enables us to identify individual visitors, however, Google Analytics will place a cookie on your device to enable the service. For more information about how Google Analytics cookies work on websites visit:


2.2. Information about cookies


What is a cookie?


Cookies are text files containing small amounts of information which are downloaded to your personal computer, mobile or other device when you visit a website. Cookies are then sent back to the originating website on each subsequent visit.  Cookies are useful because they allow our website to function at its best.


Cookies do lots of different things, like letting you navigate between pages efficiently, remembering preferences, and generally improve your experience.  You can find more information about cookies at


What are Session cookies?


Session cookies allow us to link your actions during a browser session. A browser session starts when you open the browser window and finishes when you close the browser window. Session cookies are temporary. Once you close the browser, all session cookies are deleted.


What are Persistent cookies?


These cookies remain on your device for the period of time set by our website. They are activated each time you re-visit our website.  For example this is used when remembering previous answers on incomplete forms and surveys.


Turning off and deleting cookies


Most web browsers will provide the option to disallow cookies. How you do this depends on the web browser you’re using. Instructions for disallowing cookies can usually be found in the browser’s ‘Help’ menu.


Cookies can also be deleted using your internet browser. However, unless they are disallowed they will be re-applied the next time you visit a website.


Note: Refusing cookies via your web browser will mean that you may be unable to use our site effectively. For example,when making purchases.


2.3. Online forms


If you fill out one of our website forms (e.g. when donating to us, requesting or purchasing a copy of our books or signing up to a gathering or other event run by CanYouHearUs) a notification email containing that form is sent to the relevant team within our company. No copy of the data you submit is stored anywhere. [As our site uses SSL (https) the data you submit using the contact form will be encrypted once your press the “Submit” button]


2.4. Hosting


Our website is hosted by Cyberhostpro which is a UK based company.


Company registered address:

188 Liscard Business Centre, Liscard Road, Wallasey, Merseyside, England, CH44 5TN


Company registration number:




2.5. Security


Any data received via our website or associated forms (as listed above in 2.3 Online forms) is only visible to two members of staff at CYHU. Directors Jessica Cook and Paul Scales.


3. People who receive our newsletters


CYHU makes use of MailChimp (details can be found at in order to maintain a list of subscribers to our products and services. If you wish to unsubscribe from this list and no longer receive materials from CanYouHearUs please email your full name.


4. People who contact us via email


Emails that are sent directly to us or using the online ‘contact us’ form are only visible to Jessica Cook and Paul Scales. Mails sent specifically to Jess ( or Paul ( using their addressesare only visible to the respective reciepiant. Emails are stored on the Google server.


Emails and forms regarding purchases, payments are donations are kept and processed for accounting purposes. Emails regarding general contact are kept until the resolution of the contact issue and may be used to process company reports justifying Community interest Company status that we must legally produce on an annual basis.


5. People who are our customers


Customer data is held for the purpose of first processing orders then accounting purposes that follow. The provided name of the customer and amount paid/donated are stored in an accounting balance sheet. No further data (e.g. email or physical addresses) is stored in this way. By law we must keep accounting records and data for 6 years.


6. Retention


Unless stated elsewhere in this document or in our terms of services we only store the data necessary to provide the services we provide to you. We will keep this data for as long as it is lawful for us to do so (this may be for as long as you are a customer or because of a legal obligation to retain the information, whichever is the longest).


7. Third party processors


We use a number of third-party cloud-based services for the purposes of effectively running our business and providing our services to you.


In all cases where we are using a third-party service or company, we will only provide the minimal amount of information for the purposes of delivering the service to us and to meet our requirements.


We always carry out due diligence against all our third-partysuppliers for the purposes of ensuring their compliance with data protection, maintaining adequate security of your data and ensuring they apply adequate data protection principles to the processing of the data we supply.


8. Your rights


Under current data protection legislation in the UK, you have rights as an individual which you can exercise in relation to the data we store and process about you. You can find more information about your rights on the Information Commissioner’s website:


8.1. Complaints


If you want to make a compliant about the way we are processing your data, you can contact us, using the contact details below. You also have the right to complain to the Information Commissioner’s Office:


8.2. How to withdraw consent and object to processing


Where we are processing your data and needed to ask your permission to do so, you are able to withdraw your consent at any time. If you wish to stop receiving our marketing emails you can do so by clicking emailing us via


If you wish to raise concerns about the way we are processing your data or would like to raise an objection, then please email us via with your concerns.


8.3. Keeping your data up to date


It is important that any of your data that we process is kept up to date. We will from time to time ask you to verify your contact details but if you wish to update any information we hold about you, please contact us using the contact details below.


8.4. Erasure of your data (the “right to be forgotten”)


Under some circumstances you may request us to delete your data from our systems. Where this is possible (e.g. we don’t have any legal purpose for continuing to process your data) we will erase it from our systems.


If you wish to exercise your right to be forgotten, please contact us via the contact details below.


8.5. Portability


Your right to portability allows you to request a machine-readable format of the data you supplied to us and associated service logs (where we store them). Please contact us, using the contact details below, if you wish to receive a CSV export of your data.


8.6. Access to your data


You have the right to ask us about what data we hold about you, how we process it and provide you with a copy of the information, free of charge and within one month of yourrequest.


To make a request for any personal information we hold and process about you, we would prefer it if you could put it in writing or in an email to the addresses below. We will need to verify your identity before providing the information and where necessary may contact you further to ensure we understand what data you are requesting.


9. Disclosure of information


We do not share any personal data with any third parties unless it is lawful for us to do so, if required by law to do so or if you provide us with permission to do so. Your information will never be shared outside of the EU


10. More information


For more information about your data rights and privacy ordata protection in general visit the Information Commissioner’s Office website:


11. How to contact us


If you have any questions about how we collect and use your information not covered in this privacy notice, or if you wish to speak to someone about our approach to data protection and privacy, please contact:

12. Changes to our privacy notice


We may change or update elements of this privacy notice from time to time or as required by law. The most current version of our privacy notice is available on our website at


13. Document control


Version 1.0 CYHU privacy policy published by Paul Scales 21/05/2018