NF2 Our Journeys
Forty-four extraordinary individuals from around the world unite to share their journeys so far with a rare genetic condition called Neurofibromatosis Type 2 (NF2).
NF2 involves the growth of multiple benign tumours throughout the nervous system, most commonly seen in the brain and spine. NF2 can cause hearing, sight, balance, and mobility difficulties. NF2 occurs in 1 in 35,000 of the population and, currently, there is no cure.
“I created this book on a mission to prove that there is more to life than NF2 through the uniting and presenting of people who refuse to be defined by the disease” (Jessica Cook)
There is no manual about how to live life with NF2, but how much closer could we get than hearing from a collection of people who have already lived it, and are still living it?
Is it really possible to live a happy and fulfilled life whilst battling with a degenerative and sometimes life-threatening condition that currently has no cure? Yes, is the short answer.
How do we know this? Because people all over the world are proving it.
NF2: Our Journeys is a collection of inspirational life stories written by people with NF2.