Welcome to Can You Hear Us?
Can You Hear Us? is a self-help, support, and social advocacy group for people with Neurofibromatosis Type 2 (NF2). The group has been created as a way of giving a voice to people with NF2 and to encourage each other to take advantage of adversity.
Can You Hear Us? are on a mission to prove that it is possible to live a happy and fulfilled life whilst battling with a degenerative condition that currently has no cure through the uniting and presenting of people who refuse to be defined by the disease.
NF2: Our Journeys is the first project to be developed by Can You Hear Us?’, which is book containing a collection of inspirational life stories written by people with NF2.
Can You Hear Us? hosted a book launch event for NF2: Our Journeys on Saturday 13th July 2013 where participants, family, friends, clinicians, charities and other NF2 advocates united to celebrate the existence of this much anticipated book and together party in the face of NF2. The event was be made fully accessible for hard of hearing attendees through communication support kindly sponsored by Bee Communications
We have some very good charities for NF in the UK now such as The Neuro Foundation and Children With Tumours, and even more further afield. Can You Hear Us? does not intend to repeat what is already out there but rather be a place to direct people to these valuable sources.
Planning and working towards the future in terms of a cure for NF2 is essential, but it is also important to support the present. There are people going through their own struggles with NF2 right this minute. Sometimes it is difficult to execute optimism and to believe that it is possible to have a happy and fulfilled life when living alongside this condition. But it IS possible. How do we know this? Because people all over the world are proving it. Can You Hear Us? is going to show you…!