NF2: Our Journeys
NF2: Our Journeys was the first book to be published by CYHU. It contains a collection of inspirational life stories written by people with NF2 of all ages, backgrounds and experiences.
The book was produced by Jessica Cook from the UK (who herself has the condition) and was made available to the public on 13th July 2013.
“I created this book on a mission to prove that there is more to life than NF2 by presenting real-life stories of people who refuse to be defined by the disease” (Jessica Cook)
The book is a resource for people with NF2 and also for family/friends/carers and clinicians. It presents a wide range of experiences in both health decisions and lifestyle choices.
Together we have shown that in every corner of the world there are people going through similar experiences and who understand what it is like to be us.
NF2: Our Journeys is now available to purchase from https://canyouhearus.co.uk/shop/
IF YOU HAVE NF2 AND ARE IN THE UK YOU ARE ENTITLED TO A FREE COPY OF THIS BOOK. PLEASE CLICK HERE FOR MORE DETAILS.
The book launch:
After ten months in creation Can You Hear Us? hosted a book launch event for ‘NF2: Our Journeys’ on Saturday 13th July 2013 in Cambridge where participants, family, friends, clinicians, charities and other NF2 advocates united to celebrate the existence of this much anticipated book and together party in the face of NF2. The event was be made fully accessible for hard of hearing attendees through communication support kindly sponsored by Bee Communications
Fourteen of the forty-four authors authors were in attendance at the book launch. Each were presented with the very first copies of ‘NF2: Our Journeys’ and a certificate in recognition of their achievement. After the presentations all of the authors had an official photograph before sitting down to sign almost 200 copies of the book sold on the day.
You can view a collection of photos from the day below.