Working together with the NHS

In November some of the CYHU team met with nurse representatives from each of the specialist NF2 centres in the UK to review and discuss a new booklet being produced for patients and their families, ‘Living with NF2: From Us to You’. We would like to thank the nurses for taking the time and effort to be involved in the development of what will be a belated, invaluable resource for the NF2 community. The Lottery Funded project will be completed by March 2017 with copies of the book available from all NF2 specialised centres (free of charge) and the CYHU website (postage only payable) shortly after. To find out more visit